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Krystal Tsosie – Indigenous data ethics in genomics and health | GES Colloquium
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Indigenous data ethics in genomics and health
Krystal Tsosie, PhD, MPH, MA, Presidential Postdoctoral Fellow and Co-Founder, Native BioData Consortium, at Arizona State University
Our DNA, our data, our health, our rights: thinking beyond mere inclusion in genomics datasets and thinking about equity and Indigenous data sovereignty.
This colloquium is part of the two-day workshop series with Dr. Tsosie, “Genes and Society: Decolonizing Human Genetic Research,” organized by NC State’s Being an Ally in Academics (BAA) group, the Genetics and Genomics Academy (GGA), the Genetic Engineering and Society Center (GES), and TriCEM. The goal of this series is to explore the current and historical intersections of racism, systemic inequalities, and human genetic research with an emphasis on inviting diverse and historically underrepresented groups as seminar speakers.
Abstract
For far too long, Indigenous peoples have been the subjects of genomics research and datasets. If we as scientists are not too careful, current efforts to increase inclusion of diverse, underrepresented populations, such as Indigenous populations, may repeat ethical harms of past large-scale diversity projects.
Related links:
- Establishing a blockchain-enabled Indigenous data sovereignty framework for genomic data (PDF*),
Mackey T.K., Calac A.J., Keshava B.S. C., Yracheta J., Tsosie K. S., Fox K. Cell, 185, 2022. doi: doi.org/10.1016/j.cell.2022.06.030. *Access to the PDF of this article requires login with NC State Unity ID - Native Bio-Data Consortium
Speaker Bio
Dr. Krystal Tsosie’s (Diné/Navajo) research centers on ethical engagement with Indigenous communities regarding precision health. She incorporates interests in genetic epidemiology, public health, health AI, and genetic counseling related to Indigenous data sovereignty and co-founded the Native BioData Consortium, the first Indigenous biological and data repository for US Tribal nations. She will be the first Indigenous geneticist at Arizona State University and hopes to continue advancing Indigenous-led approaches to genomic data equity.
GES Colloquium is jointly taught by Drs. Jen Baltzegar and Dawn Rodriguez-Ward, who you may contact with any class-specific questions. Colloquium will be held in-person in Poe 202, as well as live-streamed via Zoom. Please subscribe to the GES newsletter and Twitter for updates .
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